Resetting the Seizure Clock.

Last night I had my first Prolonged Absence seizure in around 7 months. A Prolonged Absence seizure is very different to a typical form of absence. A Prolonged Absence is also known as an Atypical Absence. They last much longer, minutes to hours compared to a few seconds of a typical absence. My husband describes me as being a 6ft tall toddler during a Prolonged Absence. I become confused, lost, clumsy and uncommunicative. Last night was apparently a new level. I don’t really remember any of yesterday but luckily I made notes on my phone so I can write this post. Continue reading


Gratitude 30: Day 30

I can’t believe I’ve reached the end of this project. It’s been a brilliant distraction and I’ll miss it, I honestly believe it has helped me stay as positive as I have been the last few weeks.

Day 30: Self Love

I love myself enough to do this to myself. Putting lots of strong epilepsy medications into my body just for the chance to control my seizures. Eating seeds and nuts on my cereal to encourage my womb lining to grow. Making a chart of what/how many IVF drugs to take each day to give my body the chance to love something else. 

Blog/Tweet soon @HopeEpiMum x

Gratitude 30: Day 29

Day 29: Creativity
This a snapshot of two projects I’m currently working on. One involving buttons for a friend’s wedding next July and one involving making Pom Poms for a Christmas garland. I’ve always loved having an arts & crafts projects on the go. I’m grateful for this as it means I always have something to do! My mum used to say that anyone can be creative, creativity comes from within and I totally believe this is true. Creativity means something different to everyone and that’s great! Continue reading

FET #1 Baseline Scan.

I was late to my baseline scan appointment this morning. At 9:20am I was stuck in a taxi in gridlock traffic 15minutes away (without traffic) from my clinic but with only 10minutes in which to get there. I had no choice but to ring the clinic. I’ll say this my clinic were far less frazzled than I was. I was told there was no problem and they would just make a note on my file to say I would be there as and when. This wasn’t the start of my day I had envisioned, although even with this stress (I hate being late, it can make my anxiety flair up really bad if I am) I didn’t have any doubt in my mind that our scan would go well. How right I was. Yes, you read that correctly, I was right! Continue reading

Gratitude 30: Day 26

Day 26: Family.

Family is so important to me, but alas you cannot choose your family. There are some family members on my husband’s side that I/we just don’t get on with, they don’t have our backs and that’s ultimately been their loss. Enough about them though. These are the people that matter, the fmaily I love most in the world, in no particular order here are my family: my husband & our furbaby spike, my Grandmum & Grandad, my brother & his girlfriend, my mum & papa, my 9yo & 12yo nieces and last but by no means least my mother-in-law & our now 9mo niece. These are people who can make me smile at my lowest. Be it a cuddle or good bit of sibling teasing! I’m grateful to have a select few members of my family who I know I can go to, who I know are routing for and love me no matter what. Continue reading

FET #1 Positivity Levels High.

I intended to write this blog yesterday on day sixteen of Buserelin, instead I got distracted and by the time I remembered I was supposed to blog I was too tired! So here we are day seventeen of Buserelin with just two days until my FET baseline scan. I’ve just finished my bleed which I’m sure my husband is thanking the universe for. Let me say PMS and drug induced fake menopause is not a combination for an emotionally stable woman! As I write this Continue reading

Gratitude 30: Day 24

Day 24: Knowledge

A snapshot of one of our bookshelves, as with everything in our house a real assortment. My Papa always told me that it doesn’t matter what you read (fiction or non-fiction) every book adds to your knowledge. I’m grateful that I enjoy reading and that my Papa raised me to read anything and everything. Knowledge comes from a variety of things. Books and experiences included, neither one is better, just different. Continue reading