About My Blog.

Hi, thanks for taking the time to read this short and sweet little about me section!

I have uncontrolled Epilepsy that has left my Neurologist and other Doctors stumped, with the advice of “live your life” we decided to try for a baby. We tried to conceive for two years with too many negative pregnancy tests to count. Eventually we got the news that I have PCOS (Polycystic Ovaries Syndrome) and my husband has low mobility sperm, which then led us to the mine field that is IVF. After losing 4st (56lbs) to be granted NHS IVF funding, one failed fresh IVF cycle and one IVF cycle using a frozen embryo we finally got our miracle, due 04/09/2016. This is not where our problems end though as we navigate the emotional rollercoaster that is my uncontrollable Epilepsy and our much wanted pregnancy!

Simply, this blog is a place for me to unburden my head, write about the eventful journey that is trying to conceive, being pregnant and then parenting whilst living with Epilepsy! It may not be a medical information haven but it will always be real. Jumbled, personal and full of me digressing but real nonetheless!

9 thoughts on “About My Blog.

  1. Nathan Edgy says:

    I really hope to be hearing good news soon!

    I’ve always got my fingers crossed for you and you kinda know where i am if you need to talk.

    Great idea to blog about this – if by blogging your experiences you help atleast one person then you’ve achieved something wonderful. 🙂

  2. In Megan's Shoes... says:

    I’m excited to have found your blog… My husband and I had a terrible time trying to get pregnant (took us two years) and when we finally did my epilepsy provided quite a few difficulties… Writing definitely helps. I just wanted to say although I don’t know you, I’m definitely pulling for you…

    • EverHopeful says:

      Thank you so much lovely, I appreciate it.
      Trying to conceive with Epilepsy can be so hard, people have a hard time understanding Epilepsy let alone fertility issues!
      xx

  3. Carli says:

    I am just now going through IVF and I’m struggling .they put me on birth control and I didn’t tolerate that well. I just had a few fuzzy feelings. I am nervous to keep going and would really like some input from what you guys have gone through. I would really like some help. My ivf Dr and neurologist don’t have experience in eachothers fields of medicine.

    • HopeEpiMum says:

      I’m so sorry I’ve only just seen this comment waiting for approval! If you still need to talk to the best/easiet way to get hold of me is on Twitter, my username is @HopeEpiMum I’m on there everyday xx

  4. Lydia says:

    I have uncontrolled Epilepsy too and looking to start IVF. Great to find someone who’s been through this as have lots of concerns. Is there any way of contacting you for advice? Thanks so much, Lydia

    • HopeEpiMum says:

      Hi there lovely,that’s the exact reasons I started this blog as I struggled to find info too! The best way to contact me is on Twitter, my username is @HopeEpiMum on there too so I should be easy to find. xx

  5. Emily says:

    Hello! I just tweeted you, but thought I should try here too – this blog is such an amazing read. I work for BBC Radio 4 and we’re making a documentary about pregnancy and epilepsy, I was wondering if I could possibly speak to you? emily.knight@bbc.co.uk if that might be OK, and no worries if not. All the best x

  6. Franziska Thomas says:

    Hi! Heard you this morning on Radio 4. Just wanted to say thought you and your family were great. Funny to think you are starting a journey which seems so long ago for me. My seizure types are not dissimilar to yours and I also couldn’t stop my meds during pregnancy. My boys (Oskar and Kurt) are now 9 and 7. Good luck my lovelies, the ups and downs are worth it. Oskar said to me the other day he’s happy I have epilepsy because ‘it helps us understand what’s important.’ Helps to keeps things in perspective, doesn’t it! X

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